The weirdest thing. I blacked out, only I know I didn’t black out….yet I can’t exactly recall. In the end, I found, it was autopilot. I was running our family, our hectic evenings full of wound up little beings and a fairly sick Princess all while being one worn out Mama, and Daddy out earning… Read more »
Tag Archive: A Special Needs Journey
101 Goals In 1001 Days With Special Happens
It’s here! May I introduce, Special Happens. My sister blog. A resource. A positive, informative, inspirational blog. I hope. Less personal, but personal. Whining and the incoherent ramblings of life, I will save for you, here…so lucky you are! Both blogs will be up simultaneously. I hope you find something worthy of reading and sharing… Read more »
The Life That’s Chosen Me (video / song)
Thank you to a wonderful new friend for sharing this with me. Tweet me @MiaFindngBalnce or Email me Mia.FindingBalance.Blog (at) gmail (dot) com Read more »
First Things First-Emotional Acceptance and Moving On by Cat Lichtenbelt
As part of the continuing First Things First Series, Cat Lichtenbelt has written this piece on “Emotional Acceptance and Moving Forward”. Enjoy: I see acceptance as coming to an agreement. It is like going to a meeting of the minds and everyone walking out on the same page with the same purpose and goals for… Read more »
EEG at Children’s EMU #2
EEGs are a part of our lives now. Every 6 months is the general protocol for kids diagnosed with Landau-Kleffner Syndrome (LKS) and Continuous Spike and Wave during slow Sleep (CSWS). Every 6 months because for reasons unknown to me, whether hormones, growth, the body’s ability to metabolize certain medicines, LKS/CSWS (looked at as virtually… Read more »
Our Judgment…We Don’t Usually Have Good Luck
Judgment can cloud, or enlighten; judgement from experience, from the gut. Good judgement, not the judgement of others. Judgement of our situations. So long ago, while we were investigating J.Browne’s sleep disturbances, one of the many things we were told was, “consult Dr. Ferber’s book”. Use what he says to help J.Browne get to sleep… Read more »
How Do You Describe Multiple Diagnosis?
I’ve found myself oscillating between what to focus on, what label to give us, our family, my son. Which do I highlight? How do I explain? Where do I classify myself and our interests? Our causes? We have no single route ‘cause’ of our son’s afflictions. He isn’t even dually diagnosed. He has 5 separate… Read more »
Her Flight Alone
Wicked winds blew, pulling her back, yearning, willing her tired wings to rest if only for a moment. Rapid flutters, panicked, stubborn, aching wings demanding their path be made. She struggled. Storm clouds loomed with fierceness of threat, darkness impending into a depth no light could pierce, no light could be recalled. But there must… Read more »